HI I'M LIZ

Hey my names Liz as my daughter loves to say "Mummy's legs don't work", I am a unique medical mystery since August 2017 my mobility has gradually declined.  

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Although I don't have a 100% confirmed diagnosis, they so far have preliminary chalked it up to 3 rare diseases/syndromes.  These are Adams Oliver Syndrome,  Paget's Disease and Hereditary spastic paraplegia (HSP), not to mention MND is also in the mix as they've found a similar gene to the type my father had.   

Honoured to be able to support Drink My Coffee and raise awareness for those with disabilities.