HI I'M LIZ
Hey my names Liz as my daughter loves to say "Mummy's legs don't work", I am a unique medical mystery since August 2017 my mobility has gradually declined.
Although I don't have a 100% confirmed diagnosis, they so far have preliminary chalked it up to 3 rare diseases/syndromes. These are Adams Oliver Syndrome, Paget's Disease and Hereditary spastic paraplegia (HSP), not to mention MND is also in the mix as they've found a similar gene to the type my father had.
Honoured to be able to support Drink My Coffee and raise awareness for those with disabilities.